Two-year-old Jaxon Singletary will be the focus of Saturday night’s benefit concert at the State Theatre in Albany.
TY TY — Every new day is a fight for survival for almost-2-year-old Jaxon Singletary. For Jaxon’s parents, each day they get with their precocious young son is a brand new miracle.
Doctors at an Atlanta children’s hospital told Lilac Lumpkin there was little left they could do for Jaxon, who had already endured two open-heart surgeries, and they bluntly said they didn’t think the youngster — who was born with hypoplastic left heart syndrome — would make it back to Albany. If he did, they said, the best Lilac and Michael Lumpkin and Jaxon’s dad, Shane Singletary, could hope for is three to four weeks.
That was nine weeks ago.
“We’re just thankful for every day, trying to make the most of them for Jaxon,” Lilac Lumpkin said of her son, who will turn 2 next month. “He’s doing as well as can be expected. When we tell people about Jaxon, they expect to hear that he’s just lying in a bed all day, but he’s very active. He’s learning new words, and he gets around as much as he can.
“When they rushed us up to Atlanta after he went in for a regular checkup, the doctors there told us Jaxon needed a heart transplant. They said the HLHS doesn’t allow the left side of his heart to develop, and that makes the right side work twice as hard. They said it’s like trying to run a car off a motorcycle engine.”
As Jaxon endured surgeries at six days old and at 4 1/2 months, his mother, a self-described “big Facebook person,” kept friends and family informed of his condition through the social media site. Some of the people who came across Jaxon’s plight decided to do what they could to help the family deal with mounting medical bills.
Calling on some area musicians who’ve willingly donated their time and talent in the past, and reaching out to State Theatre owner Lane Rosen, the group put together the “Jam’n’ for Jaxon” benefit, which will be held Saturday from 7 p.m. to midnight at the State.
Local favorites UBL will headline the all-ages show, and their special guests will be Another Alien Astronaut, an exciting new band that features well-known area musicians Jon Gosa, Frank Daniel, Lance Barnes and Chris Hayes. Also playing are Scheme and Guilty Pleasures.
Admission is an $8 donation that will be used to offset expenses incurred by the Lumpkin family.
Rosen, who has allowed use of the State at “absolute bare minimum cost” for a number of benefit shows in recent weeks, said the only costs for benefit planners are “around $300 for the sound crew, which is about half their usual cost, and a small amount for the janitor and a doorman.”
Rosen’s own recent health issues have spurred him to make the popular music venue available for such events as Jam’n’ for Jaxon.
“These parents are going through the worst thing a family can go through,” he said. “They’re praying for miracles, and that’s why I’ve been happy to offer the State as a venue for the benefit. People gave me gifts and support when I was going through (cancer) treatment, and I’m happy to pass it on.
“In fact, I’m encouraging others — recipients, musicians and just volunteers — to reach out to us for more of these kinds of benefit shows. I can honestly say it feels good to be able to give back. So I’m asking the community to ‘send me your tired, your poor ...’”
The Lumpkins, who live in Ty Ty, and Shane Singletary, who lives in nearby Poulan, say they are overwhelmed by the show of support for their brave baby.
“This just means so much,” Lilac Lumpkin said. “I can’t even think of the words to say how thankful I am.”